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Welcome to Jack' s site! Jack is the sweetest 6
year old boy on earth! On October 10, 2002, when Jack was 14 months old, he was diagnosed with Alexander Disease (leukodystrophy),
an extremely rare disorder of the white matter of the brain. Since that day almost 4 years ago, we've had lots of
ups and downs with Jack. His doctors are no longer sure if Alexander Disease, in fact, is the right diagnosis ( more on that
in "Jack's Story" ), but until he either starts to deteriorate further, or lives to be 100 healthy years old, we just won't
know for sure. The leukodystrophies are a devastating family of diseases, that take the youngest of children in the cruelest
of ways. There is no cure or treatment for Alexander Disease, and it is fatal.
Please feel free to explore Jack's site, and please sign the guestbook to let us know
you were here! Help us spread the word about leukodystrophy, please tell your family and friends about Jack and his site.
If you like, on the links page, you can make a donation to one of the organizations researching treatments and possible cures
for Alexander Disease, and the other leukodystrophies.
What we need most for Jack, however, is prayer. Please keep him lifted in prayer.
We believe that our blessed Holy Father, John Paul II, will be a candidate for sainthood soon. For him to be canonized, he
will need 2 miracles attributed to his intercession. The Holy Father was very open with his suffering, and believed that human
suffering was a path to Jesus. Leukodystrophy children suffer greatly, so we have chosen to pray to John Paul II, in the hopes
that he will intercede with our Lord on Jack's behalf, and maybe, just maybe, our beautiful boy can be one of John Paul's
miracles! Please join us in prayer for Jack!
Thank you for visiting, and for your support!
With Love from Jack's Mom,
Brooke
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